tag:blogger.com,1999:blog-62453562011-08-16T20:10:54.384-07:00What if they discovered <a href="http://www.ninds.nih.gov/disorders/amyotrophiclateralsclerosis/amyotrophiclateralsclerosis.htm">a disease</a> and nobody wanted it?brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comBlogger14371100tag:blogger.com,1999:blog-6245356.post-86369910689549206552008-02-02T23:56:00.000-08:002008-02-03T22:51:56.187-08:00

ok i'm dead. so what? i partook of much wonder and beauty. you should be so lucky!

rattyhttp://www.blogger.com/profile/14642496630579582168noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-3861178589673532642008-02-02T23:41:00.000-08:002008-02-02T23:48:37.355-08:00

BH died tonight at 8:40, at home, in peace. His wife and I were at his side.He wanted me to post his official last words to you. Like James Tiberius Kirk, he said, "It was fun."

rattyhttp://www.blogger.com/profile/14642496630579582168noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-84158356587917268912008-01-23T11:09:00.000-08:002008-01-23T11:14:47.439-08:00

wife, i love you.children, i love you.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-6396234620441891212008-01-20T04:06:00.000-08:002008-01-20T05:42:40.814-08:00

not his fault this time. could not spell 'fbv'(jaw thrust). knew he would do one when getting me up,.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-35769530503039945402008-01-18T08:46:00.000-08:002008-01-18T10:41:38.853-08:00

POS BSOD daughter wanted her mom, hectic with caretaking me due to sick caregiver, to hannd hber puzzlbbe pieces. she had only threeb left,then two, thebn ne. sad.timbe to gebt severe on mr. hyde. not-fire him,, fix himmm. he said theb bell was too loud, took it away. pee was dnribbling on me as hbe held urinal, and i had POS say 'leaking.' he joked 'ygeah, u r taking a lebak

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-73031639696024683152008-01-17T11:39:00.000-08:002008-01-17T19:01:32.155-08:00

yesterday i was battered. my wife had an import ant and stressful day pl anned but we h ad no caregiver. so she called an agency to send someone. WE MUST NEZER DO THIS AGAIN. my c aregiver told her how to take care of me. the ne w one began by curliing the kl eenex UP over my nose. could not t ell her nyhthing, she too stupiiid,loud.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-24122043191057856222008-01-16T08:24:00.000-08:002008-01-16T08:35:51.211-08:00

ok 4 u to s ay fire mr. hyde, but he's PERfect compared to last night's idiot-fool.lll

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-77770676197480463952008-01-15T08:19:00.000-08:002008-01-15T11:08:29.127-08:00

r1thanksthanks for treating me well monday night. it must be hard with so little sleep. i apologize for the time i did ring-flip-flip-correct. sometimes i forget what i rang for, but i will try to make sure not to ring till i remember.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-82881715583575461482008-01-14T07:45:00.000-08:002008-01-14T09:43:18.389-08:00

he started out being my best night caregiver. he calls me 'the best in the west' sans irony, and agrees when i say i respect him and would never play games. but once i am helpless in bed, his anger mounts as he accuses me of ringing the bell to toy with him. it frightens me. l wonder if he knows that when he does this, he is acting like the mean rich people told me about. i want to

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-54262565734128816672008-01-13T07:00:00.000-08:002008-01-13T09:10:26.763-08:00

tried thhis:pls come every time i ring, even if u think i am asleep.]and please no jokes about words i point. just try to help.it is iimpossible foe to reach all of the card. u may havve to move it to where my fingers are.at 2:38 he seemed furious with himself for agggreeing to this. at 5:30 i had to pee. he had put the card where it could barely ring the bell. i

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-65440712210459737902008-01-12T08:08:00.000-08:002008-01-12T08:55:17.459-08:00

my best day- caregiver, the one w ho got the 25 -percennt raise, has since about thhat time,,, develooped abn attachment to the idea that i disrespect him. he will quit after goking home on a visit. but he is also attached to thinking of hims elf as v ery getle.lll

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-27104151634601421152008-01-11T08:37:00.000-08:002008-01-11T08:44:23.034-08:00

i a m so glad my w ife's and kids'bbbodies do not have A LS......

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-66749819224530150572008-01-10T10:02:00.000-08:002008-01-10T10:10:39.691-08:00

i wish i could w alk out there and do s ome parenting.llllll

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-18786132633154023382008-01-09T07:32:00.000-08:002008-01-09T09:51:58.704-08:00

at two she told me she wd get me up to avv oid hving to constnbantly mv me.she lied to u. i had several chalvazions surgically remov ed from eyelids in '90s before married. optham dr. said 's crub the hell out of them' with hot wet towel to forfend. it worked. bbut now socrippled i can;'t. the thing on my right lid is likely a chalazion. . I TRUST ONLY U TO SCRUBBB MY

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-26456309744112305432008-01-08T10:39:00.000-08:002008-01-08T10:46:25.240-08:00

if u haveALS and u read this blog, pls comment yiour diagnosis date.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-8363741477113327762008-01-07T10:47:00.000-08:002008-01-07T12:31:13.213-08:00

heh a s emotionalProl e m s and puunishesme by ignorring some of my requests. Last night too.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-83246503397135505252008-01-06T12:50:00.000-08:002008-01-06T13:07:45.839-08:00

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-16549752242254681042008-01-05T06:57:00.000-08:002008-01-05T09:11:42.428-08:00

tried this:"i respect u. dont wany annoy u. but ido. lbast night u ssed u dont like hobi treat u. pls rell mne hobw to keep u hbbbbbbbbbbbbbbbbbbbbbbbbappy.i amafraid when u r annoynnnnnnnnnnnnned..... i like u..."his response was a speech abiout abuse by the brich vwhich never connnnnbebcted back to my conduct.wvas somme Mr. Hydddde,but not toooo bad.i dreamed the clock said 6:28,

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-69851087908073025952008-01-04T07:32:00.000-08:002008-01-04T09:40:54.412-08:00

Mr. Hydehe is superb, complains my bonnu s checks r too big, cll mne 'th best.' but at 2 am he said he doesn;t like how i treat him, got me twisted bad. but bwhen i choked, he did jbaw thrust me.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90898219961766994532008-01-03T11:46:00.000-08:002008-01-03T12:18:32.275-08:00

i w ant hospice anD ONLY IF IFNEEDED a vent... fooor some reason my lungs r strooong, knock wood. so if iget vented by surprise, bring me home so hospice cann comfort me.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-6628223153704823232008-01-02T08:14:00.000-08:002008-01-02T09:48:23.391-08:00

i liked the Ohio State video.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-34840985357500029042008-01-01T13:55:00.000-08:002008-01-01T14:02:29.561-08:00

the reason i live to write this is a jaw trust by my fwifffbe.lllllll

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-17953567043558314442007-12-31T17:06:00.000-08:002007-12-31T19:22:12.711-08:00

Brainhell.I just found your blog 2-3 days ago and have probably spent 10 hoursat least reading.Your story is riveting.You are so very very bright, well educated, loving...a great father.I am sorry that you are suffering.I wish I had something witty or insightful to say. All I know is,your story has changed the way I'm thinking about my own life right now.I hope this note finds you well and

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-68964354367436426242007-12-31T06:52:00.000-08:002007-12-31T06:57:45.525-08:00

much you can;t knnocw.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90807130347350122702007-12-30T09:55:00.000-08:002007-12-30T09:58:15.007-08:00

still here.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-54132981788783746932007-12-29T07:17:00.000-08:002007-12-29T07:58:36.979-08:00

this morning during thhhe transfer to wheelchair my airway was highly obstructed. mmy helper asked if 911 shouldbecalled, but i pointed to 'lifft forehead'and thenn i couldbreathe.lllllllll

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-63895426340531767562007-12-28T12:27:00.000-08:002007-12-28T12:36:11.001-08:00

my clumsy,weakk handmight be able to operate a remote controll, but hurry. b

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-7530302627865800292007-12-26T16:22:00.000-08:002007-12-26T16:35:45.044-08:00

hope not to jinx it, but the dailybout of coughing and suction appears tohgave faded ropy,dark and crinkled.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-18736990976400205492007-12-25T09:14:00.000-08:002007-12-25T09:23:01.746-08:00

i'm back! (ihope). it was only partly the fault of thePOS,the rest being my fault....

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-81879476931567199552007-12-22T08:40:00.000-08:002007-12-22T08:46:07.575-08:00

on the 24thh i will have been blogging four year s.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-71721635841023368082007-12-21T10:02:00.000-08:002007-12-21T10:16:29.473-08:00

they say i had a talentfor pronunciation in otherlanguages.i chalk that to empathy. in tibetan, 'phone le so, fun cha dah' means 'you have a phone call, please pick it up.'

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-21118549982473804112007-12-20T10:27:00.000-08:002007-12-20T10:35:17.018-08:00

i cannot open anydoor. ina hougse.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-46644029962909634912007-12-19T09:46:00.000-08:002007-12-19T10:00:28.146-08:00

went 11 days wth nnn bt nwthtawent 11 days sans poo, but without pain.after several doses lax, helper said 'if you could sell it, you'd mafk8e $500.'

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-87481623933710005572007-12-18T08:25:00.000-08:002007-12-18T08:35:26.495-08:00

let's just say that when icount my blessinngs, my results vvary from yours.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-71353450905014625532007-12-17T09:03:00.000-08:002007-12-17T09:14:39.475-08:00

aalmost any other one would abandon me,coninng up with a rationalization, bbut my wife is made of steel.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-51714133593509559252007-12-16T12:41:00.000-08:002007-12-16T15:32:48.208-08:00

vhc cc.vv vif i need awifiifi ne anw peg.,if i need a new peg, don;t send me to torture doc . i want replacable type not from POS still messed up, BIL to come this week,.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-9356183545317880752007-12-15T14:58:00.000-08:002007-12-15T15:55:33.290-08:00

>002 darling,thank you for asking. my body is not all right, but being loved byyou kids and your mom makes me happy. i sit in the wheelchair all daybecause it lets me go places.in the room. it does not hurt. mybirthday is . i have ideas for what to give you. i feelbetter because of your email.Love,Dad>>> Begin forwarded message:>> Date: December 7, 2007 7:38:23 AM PST> To:>>> Dear Dad,> How

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-32393800142565212702007-12-14T16:51:00.000-08:002007-12-14T17:12:01.194-08:00

i ne tour new em i need your neew email/the XP box is highly erratcc pl try usibgit.alsoremove the modem and network cards from myold ma c sowe can give it too /zz[p,

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-52931582076282025852007-12-13T10:19:00.000-08:002007-12-13T10:36:51.426-08:00

the keyboard on my computer is too big;i can't reachall of it. but the POS has a tiny one.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-52419356473546071392007-12-12T08:36:00.000-08:002007-12-12T13:15:04.067-08:00

555this bit added fhrom POS, which yeesterday major problems.yp= st b

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-13984837426970602232007-12-09T20:39:00.000-08:002007-12-09T21:14:17.418-08:00

my BIL fixed the mousekeys on the till-now useless POS 'computer' i got through the ALS clinic. i had hoped that would end my resorting to posts such as 'yyyyyyyy' or '777' -- and it might.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90630007590937951182007-12-08T14:13:00.000-08:002007-12-08T14:22:59.001-08:00

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-46643154157596381992007-12-07T06:53:00.000-08:002007-12-07T08:13:13.283-08:00

i rely on you two to jelp me avoid a death amid misery and fear. youare endangering me with your mutual disapproval. i beg you, put aside your need for dignity btil after iam dead.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-45971532988061213392007-12-06T11:11:00.000-08:002007-12-06T11:12:58.479-08:00

666

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-31001871550271817992007-12-05T06:38:00.000-08:002007-12-05T06:40:49.566-08:00

777

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-46738894813332439542007-12-03T06:48:00.000-08:002007-12-03T11:41:03.293-08:00

Thank you for contacting me. I'm living in Texas but will be back n about 2 weeks for a short visit. I will contact you then. I'd love to see all of you. Love to all

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-69559109923654977602007-11-30T11:39:00.000-08:002007-11-30T13:18:32.689-08:00

if u care at all abpot me, tell me wer to get myoelectric prottheses ehich will contai anndmove my limbs. please.;'

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-28433527658318995212007-11-30T08:11:00.000-08:002007-11-30T08:17:55.333-08:00

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-88306049183456805612007-11-29T06:28:00.000-08:002007-11-29T06:31:42.935-08:00

Most people looking at me, standing by the shredder all day feeding papers into it, might count me down as a flunky. Huh.Let me tell you something about that. You have to think about why things are the way they are. Now, the papers are being shredded because they have to be destroyed. They have to be destroyed because they are dangerous. They are dangerous in the wrong hands because they

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-33605303110905238342007-11-28T10:01:00.000-08:002007-11-28T10:26:32.539-08:00

since i was a small boy i thought she would always help me if i sked/.asked.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-30876596375620345802007-11-27T07:07:00.000-08:002007-11-27T09:28:04.976-08:00

yyyyyyyyyyyyyyyy

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-7658191515076034062007-11-24T11:27:00.000-08:002007-11-24T09:24:19.634-08:00

when my hair is combed, iitchy hairs fall on my neck an shoulders. they are still there. pls brush it with a towel to get them off of methanks 'brush' iss not 'comb'noyou helped mme thankks find other bills, open them

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90717004881254627462007-11-23T11:42:00.000-08:002007-11-23T08:17:21.519-08:00

one who was stunningly beautiful, with long wavy black hair, and a body like one of those statues in an indian restaurant, super skinny but enormous breasts, very very likely natural. she

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90332248137473617412007-11-22T09:18:00.000-08:002007-11-22T10:34:33.028-08:00

veery unffair things = ====== ≠√ beig one to 'help' mm me, b ut on a happy npteee, the Bagoo post iis mmy sonn'sfiction.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-4572305634771420392007-11-20T08:50:00.000-08:002007-11-20T09:16:01.406-08:00

Chapter one One day I met this weird person, Bago. He was half solid – let me tell you that you are thinking of the wrong solid – and half liquid – you are also thinking of the wrong liquid – in other words he was half ice and half diet coke®. In yet other words he was half a frozen person. “U w’nt ou ‘eet ie arents?”, he asked. “no”, I said “do you want to meet my parents?” “O.K.”, he said Ding

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-45677624683770619072007-11-19T08:47:00.000-08:002007-11-19T08:53:05.418-08:00

now I can draag. thanks blog pals.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-61216756458897421472007-11-18T07:31:00.000-08:002007-11-18T17:06:22.552-08:00

microsoft does not make OS X. i have no INS key. i cannot press two keys at once. i got here using universal access. i need reader help:HOW DO I DRAG WHILE USING mousekeys ON MACINTOSH?"You simply press the "0" key on the numerical keypad (on my keypad, anyway). This is a click-and-hold. Then just move. When done, press the "5" key to unclick."

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-17641464630608401192007-11-17T07:58:00.001-08:002007-11-17T08:12:41.524-08:00

HOW DO I DRAG WHILE USING mousekeys ON MACINTOSH?

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-1172802997044406632007-11-16T09:36:00.000-08:002007-11-16T07:37:01.890-08:00

would like that mixture at 6:30towel in my laphold the tube too, so the syringe does not slide out

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-24463273888129530742007-11-15T12:48:00.000-08:002007-11-15T13:04:22.258-08:00

i wish that i too could step back, walk away, or go on strike.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-16398701897093229172007-11-14T07:51:00.000-08:002007-11-14T07:58:21.954-08:00

if u will promise to ssplit he password tn 3 paeerrts wghicj u hide/tapee in 3 different rooms, and ti GET y permission ffor EACCH thing, befoe u do ANYTHINGin the account, i wil give u the login to my brok ere. u can pay my viills and look up info. ined yer help. please.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-1173634132045043542007-11-13T07:42:00.000-08:002007-11-13T07:42:58.400-08:00

is theere a statistical equation to 'prove' plagiarism, like 15 words in a ROW is 99% likely?

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-4474921441026265502007-11-12T18:39:00.000-08:002007-11-12T18:41:03.673-08:00

5

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-85190719428138151042007-11-11T09:08:00.000-08:002007-11-11T08:19:51.346-08:00

wiping with tissue closes off my nostril. that may be why i spelled 'not wipe' and was moving aaway when you wiped.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-29134194117001758652007-11-10T13:22:00.000-08:002007-11-10T18:54:20.743-08:00

Why don't my motor neurons work so well?answer that, and earn your Nobel.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-89817671912940370402007-11-09T07:37:00.000-08:002007-11-09T08:01:06.917-08:00

i value inndepensent control ovver my actions and words/ most of u w call me 'contro; reaak.' how ironic that ALS makes me so dependent inwhat shhould be my most powerfu; years.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-25239056069053577522007-11-08T14:56:00.000-08:002007-11-07T15:00:28.637-08:00

droid:Brainhell’s StatusHello has asked me to write an essay on his status. Like most of you, I suppose, I’m caught between allowing him to appear saintly and heroic (which, as those of you who have known him for quite a while will agree, we must never allow the bastard to do), and giving my true impressions of the man, with which we risk my making some truly horrifying, tasteless comments.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-86248346502420457382007-11-07T08:19:00.000-08:002007-11-07T08:37:22.299-08:00

i spend much time looking aat my right nipple.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-1386207560279080562007-11-06T07:50:00.000-08:002007-11-06T10:31:18.195-08:00

sh says i said we will no longer pay her extra. untrue. s does not answer her phone, has no == c el l , and today tod us she droppe her emaail. there is no way to make a grownup grow up. i rpea that 'i o timewe pay' (extra_. 'that's not how it works,' shs sid. oh?

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-63172933800431311112007-11-05T12:46:00.000-08:002007-11-05T12:48:54.572-08:00

........

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-54743160773769757742007-11-04T09:00:00.000-08:002007-11-05T13:33:56.167-08:00

101501708

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-21384836274096056592007-11-03T10:31:00.000-07:002007-11-03T12:47:46.273-07:00

my wife loves me.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-52524978703663123992007-11-02T08:55:00.000-07:002007-11-02T09:02:52.159-07:00

in the conversation about me being cold, i pointed to the covers and the word 'raise.' because i didn't want them hooked over my shoulder, i pointed to 'no' and 'shoulder.' once again y ou thought i wanted my shoulder adjusted, complaining about the outraged shrieking noise i make, ignoring the nonsense i was trying to say with the board, setting off off the readjustment of my entire

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-12117639687316574212007-11-01T12:37:00.000-07:002007-11-01T12:40:22.559-07:00

0

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-79090208121965215362007-10-31T08:22:00.001-07:002007-10-31T09:32:04.522-07:00

when i was 2 or 3 i was on the floor playing with sounds: 'buk buk buk, tuk tuk tuk, guk guk guk.' my father walked by at the predictable point and sternly said 'you watch your language!' he was angry. it delighted me to be thought consequential. the next day i waited until he was around and tried again. i thought it started with 'f.' this time he remained grimly silent.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-70183576366689557212007-10-30T08:33:00.000-07:002007-10-30T08:37:01.124-07:00

om

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-71387879818004213362007-10-29T08:08:00.000-07:002007-10-29T08:25:07.543-07:00

my discomfort, pain, or need for air is seen as an attitude problem.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-15275606220825702202007-10-28T08:31:00.000-07:002007-10-28T08:35:53.638-07:00

now i have my first beard. it is reddish (the irish) though my hair is nearly black (the lebanese). could no longer tolerate lifting chin for shaving. a small trimmer is used to keep my upper lip bare so my breathing is not obstructed by gobs of mucus or blood.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-78087137490825529592007-10-27T07:34:00.000-07:002007-10-27T08:23:07.564-07:00

it was plodding and dull, but i played barbie and ken when my sister bade me. my father made her stop. i had asked to learn to knit. it was hard. i started my first project, but gave it up one evening when he came down the stairs and frowned at me.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-42207950874292782462007-10-26T07:27:00.000-07:002007-10-26T08:14:34.473-07:00

> > > > A while back I asked about the spaghetti sauce recipe you posted once upon a> January, about cooking it covered or uncovered. I ended up not making the> sauce like I’d planned to. I’m just, like most everyone, so busy that I use> bottled and canned everything and while my intentions were good, it was just> always easier to grab a jar of sauce and open it. Voila, dinner! > > > >

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-8102336500719185022007-10-25T21:36:00.000-07:002007-10-25T09:37:46.594-07:00

daughter, last year i helped you carve your pumpkin at your school. it was fun. thank you. this year i am too sick to help. sorry. but please ask your mom to take a picture to show me.love,dad

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-71616614684932184202007-10-24T08:05:00.000-07:002007-10-24T09:28:41.655-07:00

yes i know i's hokum, but a japanese 'scientist' claims results from labeling containers of water with positive words. watching 'what the bleep do we know?" with my wife, it was suggested that, the body being mostly water, this could be relevant. therefore i will ask my wife to tape small pieces of paper to the hairless inner part of my arms above the elbow where i can read them. they'll say

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-37367878636162462812007-10-23T11:17:00.000-07:002007-10-23T11:19:45.180-07:00

2105

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-4924152513977077822007-10-22T08:14:00.000-07:002007-10-22T08:19:01.133-07:00

u'd b am azed at what i endure.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-44592434854525830722007-10-21T08:54:00.000-07:002007-10-21T09:03:25.142-07:00

they're not idiots, but my communication barrier makes them function as such.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-52565379092771380092007-10-20T08:50:00.000-07:002007-10-20T09:27:53.442-07:00

HNT seems to have died out. i miss it, particularly those by TKW. but am too tired to read your b logs.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-12952274054227088772007-10-18T08:02:00.000-07:002007-10-18T10:07:28.805-07:00

this morning i dreamed that my BIL launched a rocket at the beach. it flew at an acute angle of about 30 degrees, but still went so high it was a speck. inland a hundred meters or so, i had trouble pumping my fists in the air. i saw the chute nearing the shore and limped toward it. it occurred to me that i should not be able to walk. it landed near shore. i waded out to it. it was one i

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-7340924115125287722007-10-17T14:28:00.000-07:002007-11-11T08:05:54.930-08:00

get wife. ppoop in shorts. need diaper, new shorts.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-86836449779441110682007-10-17T07:40:00.000-07:002007-10-17T13:27:53.276-07:00

hi.mousekeys. went to bed before 11. woke and was helped at 118, 211, 247, 328, 422, 544, 611. csy 1447 1900

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-37753760312273616182007-10-16T07:01:00.000-07:002007-10-16T07:52:57.490-07:00

when i would ride my 10-speed home from high school, uphill all the way, if i farted i would say 'retro jetro.' the idea was a joke that the fart provided a boost to me going uphill. i have never told anyone this, nor even used the phrase. it's not a secret shame or joy, i just never mentioned it.csy 1430 2115.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-22693303270240012862007-10-15T11:28:00.000-07:002007-10-16T08:17:32.396-07:00

son,twice this week you have failed to do what my helpers have asked of you. please do what they ask right away, so you don't forget.love, dadcsy 1430 2149

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-18864771497580430032007-10-13T11:05:00.000-07:002007-10-14T09:40:52.421-07:00

Thanks so much to the Person wHo toLd me about sticky keys for the disabled..my son's teacher came to see me:i'd lke to hear him readgood, thanksyesthxhe is toothx ffor being so goodyesterday no cs, no towel.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-42300893289368027542007-10-13T07:41:00.000-07:002007-10-13T07:46:59.168-07:00

no csy, not even chin down over towel. watched some TOS with son.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-90078832405600815982007-10-12T08:10:00.000-07:002007-10-12T08:38:09.498-07:00

cs wedsnessday was 1500, 1900-2308. then no csy. i time these from the firrst minute i need suction to the miinute when i successfullyy get a tissue in my mouth wihout it triggering suction.sometimes i lie to people to prevent them getting confused and notdoing what i need. yesterday it was ratty, about those documents.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-87070080398270392072007-10-11T07:57:00.000-07:002007-10-11T09:45:41.472-07:00

k.,when i woke at 2 a.m., i pointed to 'arm,' but you read 'shoulder' above it. the adjustment i wanted would have taken 6 seconds, but we spent half an hour wasting energy as you told me about the strain on your back, my tendency to spell while you are adjusting me, and get so upset. i have a unique new idea ... please say each item as i point to it, per the instruction printed on the word

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-59343038540870642022007-10-10T07:59:00.000-07:002007-10-10T08:25:17.372-07:00

i have been trying to learn how to use the computer via the keyboard only. if i use the mouse i often cannot get my arm back up onto the armrest.csy 1815 2308.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-27211227361489639152007-10-09T08:09:00.000-07:002007-10-09T08:38:33.240-07:00

He is a mighty conqueror.In Him I'll trust all my vinyl sulphide.using undiluted 3-percent hydrogen peroxide on the tongue seems to break up the fungal mat of thrush enough that it can be suctioned out. csy 1650 2024, maybe because of the peroxide.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-24676582883917692712007-10-08T08:41:00.000-07:002007-10-08T09:02:11.765-07:00

my night drool is digesting the skin on my left neck and clavicle. csy 1800 2013

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-44965012894447441262007-10-07T09:20:00.000-07:002007-10-07T09:41:35.822-07:00

for 6 months after the icu, i never knew the time while in the home hospital bed. i would guess based on the strip of sky i could see above the curtain. grey streaks plus bird song means 5 a.m. recently i ordered an icf-c218 and had it set up on the floor where i can see it from the bed,csy none but drooled on towel 5ish to 7ish.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.comtag:blogger.com,1999:blog-6245356.post-23163608560291100132007-10-06T07:57:00.000-07:002007-10-06T08:38:13.543-07:00

my daughter was born a few weeks before my son's third birthday. on the phone after the birth, he yelled with great urgency, 'dad,i want you and mom to come home RIGHT NOW.' he yelled and screamed and hit ratty with his fists to force her to change the unusual situation.i love him.csy not bad, 6ish to 8ish.

brainhellhttp://www.blogger.com/profile/02503709622888691582noreply@blogger.com