Monday, December 31, 2007


I just found your blog 2-3 days ago and have probably spent 10 hours
at least reading.

Your story is riveting.

You are so very very bright, well educated, loving...a great father.

I am sorry that you are suffering.

I wish I had something witty or insightful to say. All I know is,
your story has changed the way I'm thinking about my own life right now.

I hope this note finds you well and relaxed. I hope your lovely wife
is OK.

Love to you and thanks for sharing your incredible experience.

I wish I could have a chat with you about life, politics, parenting,

much you can;t knnocw.

Sunday, December 30, 2007

still here.

Saturday, December 29, 2007

this morning during thhhe transfer to wheelchair my airway was highly obstructed. mmy helper asked if 911 shouldbecalled, but i pointed to 'lifft forehead'and thenn i couldbreathe.lllllllll

Friday, December 28, 2007

my clumsy,weakk handmight be able to operate a remote controll, but hurry. b

Wednesday, December 26, 2007

hope not to jinx it, but the dailybout of coughing and suction appears tohgave faded ropy,dark and crinkled.

Tuesday, December 25, 2007

i'm back! (ihope). it was only partly the fault of thePOS,the rest being my fault....

Saturday, December 22, 2007

on the 24thh i will have been blogging four year s.

Friday, December 21, 2007

they say i had a talentfor pronunciation in otherlanguages.i chalk that to empathy. in tibetan, 'phone le so, fun cha dah' means 'you have a phone call, please pick it up.'

Thursday, December 20, 2007

i cannot open anydoor. ina hougse.

Wednesday, December 19, 2007

went 11 days wth nnn bt nwthta
went 11 days sans poo, but without pain.after several doses lax, helper said 'if you could sell it, you'd mafk8e $500.'

Tuesday, December 18, 2007

let's just say that when icount my blessinngs, my results vvary from yours.

Monday, December 17, 2007

aalmost any other one would abandon me,coninng up with a rationalization, bbut my wife is made of steel.

Sunday, December 16, 2007

vhc cc.
vv vif i need aw


ifi ne anw peg.,

if i need a new peg, don;t send me to torture doc . i want replacable type not from

POS still messed up, BIL to come this week,.

Saturday, December 15, 2007

>002 darling,

thank you for asking. my body is not all right, but being loved by
you kids and your mom makes me happy. i sit in the wheelchair all day
because it lets me go the room. it does not hurt. my
birthday is . i have ideas for what to give you. i feel
better because of your email.


> Begin forwarded message:
> Date: December 7, 2007 7:38:23 AM PST
> To:>
> Dear Dad,
> How are you doing? Are you all right? How do you sit in a chair so long? how
> many months till your birthday? i hope you feel better.
> love,

Friday, December 14, 2007

i ne tour new em i need your neew email/

the XP box is highly erratcc pl try usibgit.

alsoremove the modem and network cards from myold ma c sowe can give it too /zz[p,

Thursday, December 13, 2007

the keyboard on my computer is too big;i can't reachall of it. but the POS has a tiny one.

Wednesday, December 12, 2007


this bit added fhrom POS, which yeesterday major problems.yp= st b

Sunday, December 09, 2007

my BIL fixed the mousekeys on the till-now useless POS 'computer' i got through the ALS clinic. i had hoped that would end my resorting to posts such as 'yyyyyyyy' or '777' -- and it might.

Saturday, December 08, 2007


Friday, December 07, 2007

i rely on you two to jelp me avoid a death amid misery and fear. youare endangering me with your mutual disapproval. i beg you, put aside your need for dignity btil after iam dead.

Thursday, December 06, 2007


Wednesday, December 05, 2007


Monday, December 03, 2007

Thank you for contacting me. I'm living in Texas but will be back n about 2 weeks for a short visit. I will contact you then. I'd love to see all of you.

Love to all
Weblog Commenting and Trackback by