Thursday, January 06, 2005

Sleeping hand

My right hand has been falling 'asleep' almost every night for about a week now, but apparently not due to having been slept on. Inability to move it, and lack of sensation are strong, but tingling is lighter (though present) and of a different quality than normal 'sleep' due to blood-deprivation. And when I wake and notice the 'sleep', the recovery is fairly painless and quick (20 seconds or less), with no strong painful tingling, and requires no shaking of the limb.

Thanks to ALife, who has a subscription to Nature magazine, where the ceftriaxone study was published in the Jan. 6 issue, for sending me a PDF copy.

Based on the weird tingling, and the partially ambiguous tests for Lyme, I think it possible that I have Lyme, or some other condition which mimics ALS. Yes, it fits well into the desperate-false-hopes category. But it's possible, and Lyme is treated using a long course of strong antibiotics. Perhaps even ceftriaxone? It really seems that it won't hurt me much to go on antibiotics including ceftriaxone, and it may help a lot.

Here, Rothstein says something that may be pro forma or may indicate that he does not himself have ALS and, for all his talents, doesn't know WTF he's talking about:

"It would be extremely premature for patients to ask for or take antibiotics on their own," says the study's leader, Jeffrey Rothstein, M.D., Ph.D., director of the Robert Packard Center for ALS Research at Johns Hopkins and a professor of neurology and of neuroscience. "Only a clinical trial can prove whether one of these antibiotics can help and is safe if taken for a long time."
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